Talent for Epilepsy was founded in 2009 by Grace Edwards. Her cousin Logan is a person with Epilepsy. He is one of 3 million Americans affected by this irreversible neurological disorder. It is estimated that 1 in 26 people have epilepsy and that it is responsible for over 50,000 U.S. deaths each year.
Logan was diagnosed with Epilepsy in 2005 (at the age of 1) and we have watched him deal with the stigma associated with this disorder throughout his life. Many children and adults do not understand what Epilepsy is or how to deal with it. Logan gets blank stare seizures and grand mal seizures. Thanks to medicine that Logan takes daily and a pacemaker that was surgically implanted in his chest Logan’s seizures are not as severe as they could be. But surgery, tests and medicine are expensive and even the best insurance does not cover much when it comes to Epilepsy.
When Grace was seven years old she learned that Logan’s medicine was expensive and his family was struggling to pay for it. Some families are homeless and can’t afford to pay for their child’s epilepsy medicine. Epilepsy is a life threatening disorder of the brain and can lead to death, can you imagine being faced with the decision to eat or provide your child with life saving medicine?
Grace decided that she wanted to do something to help people pay for medicine and she also wanted to raise awareness. Thus, Talent for Epilepsy was created and with help from family, friends and the community the first Talent for Epilepsy Talent & Fashion show was held in 2013 with a huge success!